AcroTales
AcroTales is a series of interviews with people living with Acromegaly - a rare condition caused by a benign tumour growth in the pituitary gland.If often takes 6-10 years for Acromegaly to be diagnosed and patients usually have a complicated journey to diagnosis. Acromegaly causes an excessive release of growth hormones which results in enlarged facial features, growth of hands and feet, changes in jaw and bone structures, loss of libido, visual problems and more. In each AcroTale, patient and advocate Dan Jeffries talks to acromegalics from around the world, discussing diagnosis, treatment and the effects on social and personal life.
AcroTales
Episode 21 - Natalie
August 04, 2024
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Dan Jeffries
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Season 1
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Episode 21
In Episode 21 of AcroTales we meet Natalie who is based in Buckinghamshire in the UK.
Natalie's story is rather different in that she has elevate IGF-1, a micro adenoma yet her Oral Glucose Tolerance Test (OGTT) is in range - and therefore has not yet received an official diagnosis. So what's it like living with the symptoms of a condition yet not knowing whether you actually have that condition or not? Natalie outlines this unique situation whilst considering what the present - and future - holds.